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LICENCE.md

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COPYRIGHT NOTICE

We have chosen to apply the Creative Commons Attribution-NoDerivs License to all copyrightable parts of our databases, which includes the sequence alignments. This means that you are free to copy, distribute, display and make commercial use of the databases in all legislations, provided you give us credit by citing the following;

Robinson J, Barker DJ, Georgiou X, Cooper MA, Flicek P, Marsh SGE: IPD-IMGT/HLA Database. Nucleic Acids Research (2020), 48:D948-55

Robinson J, Malik A, Parham P, Bodmer JG, Marsh SGE: IMGT/HLA - a sequence database for the human major histocompatibility complex Tissue Antigens (2000), 55:280-287

We are strongly opposed to the mirroring of the data contained on our sites, both hla.alleles.org and the IPD-IMGT/HLA Database, and would ask that rather than mirror the information, appropriate links are provided where applicable.

If you intend to distribute a modified version of our data, you must ask us for permission first, please contact hla [at] alleles [dot] org for further details of how modified data can be reproduced.


FUNDING

The development of the IPD-IMGT/HLA Database was funded by an EU BIOTECH grant. The work of maintaining and updating the database has been supported in the past by the Imperial Cancer Research Fund, the National Institute of Health, the National Marrow Donor Program (NMDP) and more recently by the Anthony Nolan Trust. The continual maintenance and any further development of the database relies on alternate sources of financial support, which are actively been sought for the continued maintenance of the database. The Sequence.org initiative at the NMDP has solicited funds from institutions and companies who produce HLA typing reagents, typing systems, and instrumentation or that otherwise utilise these databases in critical components of their business. To learn more about how your business can support the IPD-IMGT/HLA Database, please contact: Todd Peterson, (Email: todd [dot] peterson, [at] nmdp [dot] org), Be The Match Foundation.

If you intend to use any of the data found on our sites for commercial use, we would ask you to consider funding the database and the work we do. Without continued funding the database cannot be maintained.


DISCLAIMER

Where discrepancies have arisen between reported sequences and those stored in the database, the original authors have been contacted where possible, and necessary amendments to published sequences have been incorporated. Future sequencing may identify errors and the WHO Nomenclature Committee would welcome any evidence that helps to maintain the accuracy of the database. We therefore make no warranties regarding the correctness of the data, and disclaim liability for damages resulting from its use. We cannot provide unrestricted permission regarding the use of the data, as some data may be covered by patents or other rights. Any medical or genetic information is provided for research, educational and informational purposes only. It is not in any way intended to be used as a substitute for professional medical advice, diagnosis, treatment or care.

We reserve the right to use information about visitors (IP addresses), date/time visited, page visited, referring website, etc. for site usage statistics and to improve our services.


CE Marking, MHRA and MDR compliance

The matching algorithms available on the IPD websites are classified as decision support software, they provide reference information to enable a healthcare professional (HCP) to make a clinical decision, where the HCP ultimately rely on their own knowledge and expertise to decide on the treatment option for their patient. The algorithms will filter the data for the healthcare professional to review, the raw data will always need to be reviewed and any reported results are calculated based on algorithms implemented from peer-reviewed published papers. The results could be reproduced manually but the tools allow for a faster analysis time, and analysis of multiple patient and donor combinations at the same time. For this reason, this software is not considered as a medical device under regulation The United Kingdom Medical Devices Regulation 2002 (UK MDR 2002).